Letting Joy Win

We have wonderful news! I am finishing my i.v. treatment at nearly the same time as our youngest and we will be able to return home in a few weeks. It has been January since I have been home. A long time to be away.

We've adopted a rescue Border Collie. My daughter has waited forever for a dog so you can imagine her excitement. My emotions oscillate between the joy I feel about reuniting our family and fear of going off the i.v. antibiotics. This is my second picc line. I lost a lot of ground when I switched to oral antibiotics the first time. I am pushing down the fear we'll lose the ground we've worked so hard to gain and letting joy win out.

We all have much healing still to do, but it took years to get to this point, so it is not a surprise it will take time. I will be bringing home a six year old who is feeling really good for the first time in her life! She skips, bounces and sings everywhere we go! Now, that is something to celebrate! It is time to heal on the shores of Lake Michigan. Sounds pretty great!

If you are interested in learning more about Lyme disease, there is a fabulous award winning documentary called Under Our Skin coming to theaters this summer. It is also a selection on NetFlix. Hues of nature is donating half of all proceeds, excluding shipping to Turn the Corner Foundation, a nonprofit active in the battle against Lyme disease in hopes of helping other families like ours.

Wishing you many blessings!

Spring has finally arrived!

The last few months have been a blur as we continue down the road to better health. We have much to celebrate as the spring flowers return and we welcome a new foal where we're staying! The girls have made remarkable progress! There are no words to capture the joy we feel, as we watch their joy in healing! From a nightmare, three miracles are blooming. Our family is still separated, as our youngest and I continue picc lines and i.v. antibiotic therapies, but the distance is lessened by Skype and a web cam!

We've loved a glimpse into the White House through the lens of Pete Souza. Pete has uploaded many images to commemorate the first 100 days of the Obama administration.

Hues of nature has undergone a change. I am again making a few fairies with 50% of the proceeds donated to Turn the Corner Foundation, a not-for-profit foundation fighting Lyme disease.

Thank you so much for your wonderful support of hues of nature and our family as we travel this road together! Wishing you a spring filled with so many blessings!

Family Time

It has been a crazy few days with many doctors' appointments, tests and procedures, but it has been wonderful to have our family together.

Our friends sent a wonderful Bee's Wax Candle Rolling kit from Magic Cabin and the girls really enjoyed making candles together. They scored a sheet of wax in a right triangular shape to make a tapered candle. They laid a wick along the long side and rolled the wax around the wick. They are beautifully dyed and smell delightfully of bee's wax. A treat for the senses. Thanks Smiths!

Settling In

As I continue my treatment, I've gained some company. Mikayla and I are in Detroit for six weeks while she undergoes i.v. antibiotic therapy for Lyme, as well. She began treatment on Tuesday and is settling in. She gets tired, too, so we've been napping together. In addition to a nurse's cap, I've added a teacher's cap as we try to stay as caught up as possible. Playing the oboe was a bit of a challenge with a sore arm, but we were creative problem solvers and devised a method that helped. We will know on Wednesday if Olivia will be joining us. I have started a website at www.caringbridge.org. The girls' website is named, "mikaylaandolivia". Sending our best.

Our little trooper!

Our little trooper did fantastic with her lymph node biopsy, yesterday. She was very excited to have the bump in her neck removed. It was often sore. The wonderful staff, the surgical ward's dvd player and the hospital's gift of a purple bear made the morning pass smoothly. She was slow to wake from anesthesia and they let her sleep so Mom and Dad were able to enjoy the inaugural events at noon and catch a few glimpses of Pete, to boot!

As the morning progressed, I began having flu-like issues so it was a long trip home, but as our little trooper said the night before when I asked her to put her coat on to go to the restroom so she wouldn't get sick, "Mommmmm, how can you GET sick if you're ALREADY sick."

She has a point. : )

Catching Up

I hope this finds everyone enjoying a wonderful New Year! The sun is shining for the first time in days and it is beautiful! My appointment with my opthamologist went very well. My corneas are clear! Another positive sign! I have added an antiviral component to my antibiotic treatment and true to form, I am feeling worse, as expected, and will continue to feel worse for several weeks before I begin to improve. Exhausted, with joint pain and headaches, comes close to summing it up, but the girls are in school, the house is quiet, and when I need to sleep, I do. Several vitamin supplements have been added to my healing regimen.

I'm gathering strength for round two. Lyme disease can be transmitted through the placenta during pregnancy, and it has. The light at the end of the tunnel? The joys of a healthy family. Enjoy life's blessings!

Breaking news!!!!

Pete Souza, has just been named the new White House photographer!!! Pete will be returning to the White House, having covered the second term of President Ronald Reagan. To read more, please visit http://nppa.org. We are so thrilled!!!! Congratulations, Pete!!!!!!